The 80 odd families in Hospice Buffalo’s ‘Essential Care for Children’ program care for kids with life-threatening illnesses.
POMP is an intervention tailored specifically for caregivers of children, combining psychosocial interventions and photo voice, and sharing them using a new social media app.
POMP combined photos with spoken or written narratives and made them available on mobile devices. Over the course of nine weeks, caregivers were given prompts to explain what they deal with in every-day life. Participating caregivers were asked to post 2-3 photographs accompanied by spoken and written narratives to a private social media portal once a week for nine weeks.
While the goal for POMP initially was to give caregivers a voice in the community, it’s also serving another purpose – giving caregivers a shared experience with each other.
One touching exhibit:
"My story as a caregiver may be different from most. Macayla is my step-daughter. I have been with her dad since before she was born. I was 19 when I took on this great responsibility. For the past 17 years I have been her primary caregiver and at the same time the "step-mom". It has definitely been a long hard journey but I would not change it. I have learned so much about myself and my ability to be completely selfless for another person, even when she doesn't always want me. I am stronger than I ever imagined I could be."